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The Crisis of Failed IVF ~ A Guest Post

Hello! This post was written by a fertility nurse Robyn Nazar who approached me about featuring this article. Today, I am sharing it with you.

The Crisis of Failed IVF

by Robyn Nazar, RN BSN

When talking about IVF most people talk about the “success rate” of this infertility treatment. Rarely do you hear one talk about the failure rate, which – in all honestly – may be what really matters.

As most know, the majority of IVF treatments fail. The average IVF success rate in the United States is around 30%, but drops dramatically with every year of age. Unfortunately by 41 the likelihood of having a live birth after an IVF treatment lingers somewhere around 12%.

However, despite the diminishing chances with each IVF cycle, many women go back again and again – clinging to
the thread of hope that one day the statistics will finally be on their side.

In a very moving essay featured in the Wall Street Journal last July titled, “My Fertility Crisis” the 42 year-old author Holly Finn gave a very real account of her own experiences with failed IVF treatments. After multiple failed IVF treatments she asked “Would a sane person bother trying again?”

Her question is a very real reflection of the conflict and brokenness that couples feel after trying – and failing – at  IVF. She wrote,

“IVF brings you to your knees and dares you to stagger to your feet again. Even as you steel yourself for more shots and setbacks, it forces you to remember the gentleness in you and the true reasons you want to bring another human into this world…”

“…In the end, infertility can make you feel less human. As cultivated as we are, we hold on to a deep-rooted belief that our worth is tied to how well, and how much, we reproduce. I’ve seen women and men shrink like salted slugs during IVF treatment. I’ve done it myself, disappearing even as the hormones start to puff me up. The whole process makes you feel unlovable.”

Her heartbreaking essay is an excerpt from her book “The Baby Chase” in which she details her every thought and emotion experienced through her walk though infertility. It is stories like hers that would send any couple considering IVF running for the hills.

However, as a fertility nurse, the resounding hopelessness of her story breaks my heart. Miracles can happen and there are many wonderful infertility specialists and physicians out there who are dedicating their lives to helping women just like Ms. Finn.

Take Dr. Norbert Gleicher, for example. As specialist in infertility of “older women”, Dr. Gleicher was riveted by Ms. Finn’s essay – so much so that he sat down and wrote a four-page response.

“What struck me in reading Ms. Finn’s essay was that she did not reflect the anger our profession often faces in publications describing failed IVF and infertility treatment experiences,” wrote Gleicher.

“Instead, she projects a degree of hopelessness and sadness in her message, which is almost harder to take. What she is really telling us in her piece is that as a medical specialty, it is high time to recognize that we, to a large degree, are failing a rapidly growing patient population [of older infertile women] which urgently needs our help.”

He goes on to say that it is women like Finn that he is working with every day to help realize a dream of a child – and then counters her defeat with messages of hope,

It is essential to recognize that even “older” women left without ovarian function of their own still have options… Women today are no longer limited by their own reproductive lifespan (i.e. their ovaries’ ability to produce viable eggs) because egg donation has become widely available. In the United States, egg donation now represents the most rapidly growing fertility treatment within IVF.

Furthermore, he mentions other treatments such as DHEA, which are evolving as alternative ways for older women to become pregnant by using their own eggs.

I was really encouraged by Dr. Gleicher’s thoughtfulness to respond to Ms. Finn’s article because I think that her personal experiences could come across as alarming to those new (and optimistic) to IVF. Although, an “eyes wide open” approach is essential when embarking on the TTC journey, thereality is that reproductive medicine is a fast-growing medical field which continues to defy the odds time and time again.

However, it should also be acknowledged that most couples don’t have such limitlessness resources to support repetitive infertility treatments. Those unfamiliar realities of infertility may callously suggest that those last precious dollars should be spent on an adoption – not on a risk.

But until one is in that vulnerable moment of seeking child of your own making – one never knows what extreme lengths may be taken to make it possible.

So if you are in a fertility crisis try and take stories, like Ms. Finn’s, with a grain of salt. Disappointment is a very real part of the TTC and IVF process, but don’t be disheartened. A small chance is still a chance and thanks
to wonderful infertility specialists, like Dr. Gleicher, we are reminded that hope does still exit.

 

Thanks so much for sharing this Robyn. I agree that hope does exist. And it doesn’t hurt to be reminded.

Thank  you! ;-)

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Meet Heather!

Survive Infertility and ThriveMeet Heather, My newest success story. She writes at Survive Infertility and Thrive! Read on for her inspiring story:

1. How long did you struggle through infertility? About 5 years.

2. What did you go through (as far as treatments, different doctors, adoptions agencies, etc.)?

I remember sitting staring at that phone. I must have sat there for a long time before I got up the courage to make that call to the fertility clinic. All the fears of: “How much was this all going to cost?”, and most of all, “Can they actually help me?” were swirling around in my head. Because, as the years pass, it gets harder to trust another doctor and embark on another procedure. It gets harder to open up to trying again after repeated failures.

Four years back in 2007 I went to my first gynecologist. He treated me like a complete idiot. Just because I couldn’t remember exactly how long my periods were, or exactly how long I’d been off the pill. I was so ignorant back then. I didn’t question the doctor when he merely counted days and didn’t scan me to figure out exactly when I was ovulating. I was so sure I was not fertile on that first transfer. He drew out seven pipes filled with blood because of course everything was not lined up and ready. He made catty remarks such as “You really don’t want to get pregnant, do you?” But what did I know back then? I felt like complete shit, and was cramping like hell. The second day was a bit better pain wise. (I was a bit more fertile by then). I was in a better frame of mind and hubby took me out for breakfast. I drank two cups of coffee. What did I know about caffeine and fertility back then? Not much. But we did our best that we knew how to do at the time, and it was a negative outcome.

I took a bit of a break after that. But I used the time to get better informed. My mom bought me a book called “Fertility Wisdom” which made a whole lot of sense to me. I went to a homeopath. I started subscribing to fertility newsletters. I heard about Sarah Holland and her fertility conference and I learned a whole whack more. So in 2010 we went for our second IUI, with a different gynecologist. This guy was nice to me and did lots of scans and injections. Yip, definitely in better hands. This time I proceeded the treatment by six months of acupuncture, homeopathic tablets and a very strict no sugar, no caffeine, no dairy, no gluten diet. I landed up becoming real skinny. I wasn’t taking any chances. I listened to Circle and Bloom. I did EFT tapping. I poured myself into this. The IUI took place during SA’s Fifa World Cup and I was so filled with hope.

Again, another disappointment. This was worse because of putting in so much effort from other avenues. And to top it all off my maid’s 14 year old daughter gave birth. We were even offered her baby two months later. To say it was a hard time and a hard decision would be an understatement. Nobody should have to make these kinds of decisions. And you can imagine the effect on our marriage. Adoption versus biology was suddenly this huge issue and we had to figure it all out. In the end, after going for some EFT tapping to calm myself down and realise there were other options, and blogging through all of this, the best thing that could have happened gradually did a work in our relationship by the following year. I became more accepting of adoption and we even visited an orphanage together. My DH became more accepting of IVF and came on board with taking money out the bond to pay for it. Nobody talks much about how hard this all is, but we got through it.

In 2011, I took a different approach. I went to a different acupuncturist who was also a homeopath who had been recommended to me. He was very good. While I tried to stick to the fertility diet, I was not as strict as last time. I did eat unhealthy stuff at times, but I didn’t stress about it. I was not going to get skinny again. The doctor at the fertility clinic was excellent. I had heard a lot of good things about him. He immediately did a scan and picked up some problems. I had also been having very bad period pains and he suspected endometriosis. He scheduled a laparoscopy. He also put me through a load of expensive blood tests. They found out that my TSH was slightly too high and I went onto Eltroxin. They also found that I had antiphosholipid antibodies which could also be medicated once I got pregnant (they had the potential to kill a developing fetus! Thank goodness I found out about that!) I had the op. My mom came up and looked after me. DH even helped out. They found stage two endometriosis and removed a big nasty fibroid. It was all about “out with the old and in with the new”. We prepared for IVF.

The last month before IVF I went for a follow up appointment with Dr. R. He said I would be ovulating on Thursday, and should try for conception as a last chance. I thought this was hilarious. It was just like my homeopath trying to get me pregnant naturally. It had never ever worked before, so why should it work now? But what the heck, we tried. I went for acupuncture on that day. I listened to the pre-IUI/IVF Circle and Bloom audios. I focused on that healing path. But my mind was the next month. Two weeks later, waiting for my cycle to start so I could get going with IVF, I was still waiting. And a miracle happened. Two lines happened. As I write this I am 17 weeks pregnant. It is still very early days. But I am so glad that I persisted. I am so glad that we did not give up. I am so glad I picked up that phone. Sometimes it really does take courage to keep going. It takes courage to ask for help when you’ve had some bad experiences before.

3. How did you handle disappointments through your cycles (natural and otherwise) or months of waiting?

I varied through different moods. Sometimes I would get depressed. Other times I would be filled with hope and strong in my faith. I think that the support from my husband and the love from my dogs did help a lot, as well as blogging, and chatting with friends. I always maintained that each failure was there to teach me something: to make better decisions next time, and it was true that I did select better doctors each time.

4. What were the ‘stress-free’ techniques that you tried that helped you get through the cycle or time (yoga, meditation, acupuncture, support through family, friends & on-line, etc.)?

Blogging through my problems has definitely been a big help and support. It is really amazing to get not only support but also information from other people out there who have been through what you have been through. I also had a friend going through infertility treatments at the same time as me which helped a lot.

I used acupuncture through both my IUI cycles and I found it relaxed and strengthened me. Particularly with my second acupuncturist, he used to look at my tongue and know exactly which meridians required assistance. He gave me acupuncture on the day I conceived. I did a fertility yoga dvd and enjoyed this one simply because it worked for a non-fit person such as myself. I have reviewed this dvd on my blog here.

I used Emotional Freedom Techniques which is like acupuncture without the needles. You tap on certain meridian points and say affirmations. This kind of thing particularly helps in fearful situations e.g when picking up the phone, facing an operation or procedure. I’ve put together a comprehensive overview of infertility emotional issues using this technique here. I also did pray a lot! And I had a number of people praying for me.

I have put together a free series of survival techniques you can read on my blog here.

5. If you could give advice for couples going through infertility now, what would it be?

Don’t give up. This journey is extremely hard, but it is often at the point where you are really ready to throw in the towel that you experience your greatest breakthrough.

Get all my survival tips here.

Blog: http://surviveandthrive.co.za

Facebook: http://www.facebook.com/heather.surviveandthrive

Twitter: http://twitter.com/heatherstep

Heather and her dearest hubby at 14 weeks pregnant. Their other children (i.e. dogs) are in the background).

 

Thanks so much Heather! Good luck with the rest of  your pregnancy!

Go to her blog to follow her journey into motherhood!

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Meet Crossing my Fingers!

Meet Crossing my Fingers! She blogs at Crossing My Fingers But Not My Legs. Read on for her inspiring story!

1.  How long did you struggle through infertility?

We started TTC in October 2009 and the FET we did that I am now pregnant as a result was in August 2011.

2.  What did you go through (as far as treatments, different doctors, adoptions agencies, etc.)? 

 What did I go through? What DIDN’T we go through…highs, lows, excitement, disappointments but as far as treatments, we did one fresh IVF cycle December 2010 transferring 2 embryos and we did a FET in August 2011 transferring 3 embryos.

3. How did you handle disappointments through your cycles (natural and otherwise) or months of waiting?

After our fresh cycle didn’t work, I didn’t really know how to function. I took my time to be upset but then decided that I needed to figure out how to get back to being “me.” I had a meeting with a pastor who helped me find some peace and work towards moving forward. After that meeting, I really focused on getting myself healthy. I ran 2 half-marathons, swam in a team triathlon, lost about 40 pounds and just felt better about myself! I really think taking time to focus on how to be healthy took my mind off playing the what-if game and it lead me into my FET with a totally different attitude than I had going into our fresh IVF cycle. The same month as my FET, I was asked to help start a new organization in the St. Louis area called Midwest Infertility Awareness. This was exactly what I needed because it kept my mind off the 2ww and allowed me to use my experience to help other women in the same boat.

4. What were the ‘stress-free’ techniques that you tried that helped you get through the cycle or time (yoga, meditation, acupuncture, support through family, friends & on-line, etc.)?

Before my FET, I did acupuncture (I still am!),bikram yoga, and focusing on a healthier lifestyle. This time around, we also didn’t tell people we were going through treatment. As much as it sucked not having that support, I think it brought my husband and I closer since we leaned on each other more.

5. If you could give advice for couples going through infertility now, what would it be?

“The best laid plans…”, right? We all had them and somehow we’ve ended up on this roller coaster ride called infertility. When we first started having trouble TTC and found out we would have to see an RE, my husband and I swore we’d never do IVF. No way could we afford it or take that risk but look at where we are now. You just have to follow your heart and do what is best for your family, not what your parents think or your co-workers but what you and your spouse think is best. You may not know which doctor is on call to do your transfer, you might open that box of meds for the first time and be totally overwhelmed (I was!) or you might have to depend on your spouse, who you swore would never stick you with a needle, to give you a shot right in the derriere but you will figure it all out! Infertility WILL make you a stronger person!

 

* As of  12/12, She is 18 weeks pregnant and due on May 13-Mother’s Day!

Thanks so much for sharing Crossing My Fingers! Check out her blog to follow her journey!

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Believe!

 

  It’s another special blog love post for this month. I know with Christmas less than 2 weeks away and Hanukkah in 8 days, it may be hard to have happy thoughts and feel merry and bright. All the commercials are centered around happy kids waiting for Santa, the mailbox may be filling with holiday cards adorned with adorable baby pictures from your family and friends, and every-one’s talking about the perfect gifts to give. But your perfect gift isn’t the one you can wrap up with a big bow and leave under the tree. And most likely, you’re having a hard time believing the happy family holiday you once dreamed of will ever happen. Well, I’m here to boost your beliefs.

   One Christmas (not too long ago) I was feeling very low. Although I already had my one little IVF miracle, I had tried all of that year unsuccessfully with 6 months of natural trying, a chemical pregnancy from a fresh IVF cycle, and a negative result from an FET. I found it hard to believe that we could be anything more than a family of three. And, then the next FET we did after the holiday worked and the following Christmas was the first for my twins who are now 2 years old! Believe in miracles!

I am leaving you this video I had linked to last year. It is a powerful one. My wish is that it gives you some hope…I believe that there’s a change around the corner.

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It’s Coming on Christmas

  So, It’s Blog Love Monday where I usually feature 3 bloggers at random and write about their happenings in their life according to their most recent blog posts. But this month during the holidays I’ve decided to change things up a bit. I know the holidays are pretty difficult when dealing with infertility. I’ve been there. And, while I would love to give some extra love out there to some ladies, I know you all need a lot of love. So, I’m going to do a little something special each Monday this month to share some blog love to all of you who happen to stop by.

   I was just decorating my tree and started listening to my Christmas play list and heard this song. It’s called River by Sarah McLachlan. It’s pretty old, many of you probably have heard it before. It really is one of my favorites because it carries so much emotion. I wanted to share it with all of you because I think when we are going through infertility, we all wish we had a river we could skate away on, especially when “it’s coming on Christmas“. The lyrics are beautiful. I want you to take it in and remember that we are all here, perhaps hurting and feeling alone.  While everyone is “Cutting down trees, putting up reindeer and singing songs of joy and peace,” all we may want to do is hide and skate away. But, we can have faith. It may be coming on Christmas, but it’s also coming on a new year of possibilities. Believe in the magic of the holiday season and don’t let that slip away.

  Here’s a great video to inspire you while you listen…

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Lovin’ Sara, J.D.W. Montgomery, Katherinebee!

 It’s Blog Love time! ;-)

  First up, I’m lovin’ Sara from empty whole. She recently wrote about some results from her husband’s hormone tests and is now deciding her next steps in tricks and treats. There has been some changes in her family with gaining/losing a cousin which you can read about here. And a little while ago, lost power but got power restored. Go send her some love!

  Next up is J.D.W. Montgomery from Life’s Breath. She has a wonderful Thanksgiving post which includes a sweet memory of her grandmother and of being thankful. In Dropping the hate: Day 51, and in Day 44, J.D.W. writes with such conviction on all the positive changes she has had like making healthy choices! Love that! Go send her some love and encouragement!

 And lastly, we have Katherinebee who blogs at Waiting for Bee. She has an update on her recent FET cycle which was cancelled due to a thin lining and she is trying to keep her head up and find hope.  In still here,  and Things are tough, Katherinebee is trying to figure out why her last IVF didn’t work out. She really could use a few virtual hugs right about now. Go send her some love! 
(And since my google account won’t let me post a comment there, please tell her I featured her blog here! Thanks so much!) 

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Winning the War

I’m recycling this post from last year! Thank you to all who have served!  

Today, on Veteran’s Day, I’m not only reminded of all those that have fought in a war to help others, I’m also thinking of all those that are battling infertility around the world.

   Throughout my struggle, there were many times I felt like I was on the front lines, arming myself with ammunition (injections) and intelligence (as much information as possible) that would help me get through. And often times, even with the best soldiers and generals on my side using the best war tactics they knew how,  I lost the battle. Some of those battles were harder to get through, grieve over and move on from than others. And, I have the battle wounds to prove it. You may never be able to see them, but they are there. Infertility has wounded my heart and left scars on my soul.

  But, even with all the losses, ultimately, I have won the war! Infertility made me feel broken but it never truly broke my spirit and I have come out the other side victorious!

  And you can too.

  Whether you achieve success through a miracle pregnancy, an infertility treatment or surrogacy, adoption or ultimately choosing to be child free, you can beat infertility and the war it can wage on your body and mind. This Veteran’s Day while you remember those that fought for their lives to help others, remember all that you are doing to fight for the lives of your future children. It will never go in vain.

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Lovin’ Jaime, Lyndsay, and Darek!

It’s BL time! ;-)

  First up is Jaime from IUI to Roux-en-Y to ?? She went through a Roux-en-Y bypass surgery this summer and has now lost 100 pounds! Wow! She admits to being a bad blogger but has been busy with phlebotomy classes. Jaime participated in ICLW last month, so here’s a welcome post all about her history. And in her newest post, she is thanking all her new followers and celebrating her first anniversary! Go congratulate her and say hello!

  Next up is Lyndsay from Waiting for that Positive.  In her Positivity post, she lists all the things that are positive for her right now as she waits for her upcoming IUI cycle! She has had some ups and downs that you can read about. And, she recently reviewed The Conception Chronicles for The Ladies in Waiting Book Club. Check it out and wish her some luck!

 And lastly, I’m lovin’ Darek from The Eternal Guest Room! She is scared about her upcoming IVF cycle and overwhelmed by the process. She recently visited the newest member of her family, her sister’s son and expresses some real moments of sadness but I love it when she writes, “Sometimes the hardest things in life turn out to be the best things you can do, and this was one of them.” And in something crazy, she recently decided to lead her support group which she has been going to for over a year and a half but has been so shy at. Go send her some love and encouragement and wish her some luck!

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Today in Retrospect

This is a post I wrote last year with a few adaptations…

Three years ago today, I just had an FET the day before and was quite vulnerable since we recently had an unexpected chemical pregnancy from a fresh IVF.  But I was also hopeful because we made the drastic decision to put 3 embryos back in (as opposed to putting the usual 2 back in on the past 4 cycles) and we were confident at least one would stick and we’d give our daughter (our first IVF miracle) a sibling.  Eleven days later, we got the devastating news that none of our embryos made it. That cycle was negative as all other cycles had been that year. More down than I had ever been through my infertility, I decided to take a much needed break…all the while wondering if I would ever be a mom to more than one child….

  Two years ago I was in the hospital at this time, overwhelmed with emotion from the birth of my twins and juggling the very precarious situation of breast feeding these tiny newborns! My heart grew so much bigger and I haven’t been the same since.  I have never felt such a leap of love ever in my life as I had that day. My miracle twins were born (via an FET that followed the above mentioned 3 month break) and they completed my family. I never knew life could be so unexpected, so incredibly fulfilling. I knew I was truly blessed.

   This year, I’m about to put my 3 miracles down to bed…and as they snuggle with stuffies and dream about tomorrow, I am amazed at how much they’ve all grown. My twins turned 2 years old today and they still amaze me everyday. I still feel truly blessed. And mostly I am fully aware that had it not been for my infertility, I would not be the person I am today, a mommy of 3, or a writer of this blog…which takes me to the reason for this post…

  Sometimes you never know where a dream can take you, or how much can happen in a year, or what direction your life will go. Hold on to the belief that you will find fulfillment in one way or another. Keep hope alive, believe in miracles and someday, you will wake up to a reality that may even turn out better than your dreams.

Happy Birthday Mia and Logan!
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Live for the moment…appreciate the day!

I’m recycling this post from last year. I hope you all have a wonderful Mother’s Day!

When my best friend celebrated her first Mother’s (to-be) Day, I had just decided to start trying and with high hopes, I was full of excitement, naive to the fate that lied ahead for my husband and I. The following year, my best friend was celebrating her very first Mother’s Day and I was incredibly upset because I had just received negative results for my very first IVF. And while I had a nice day with my mother and mother-in-law, I couldn’t shake the frustration and utter pain in my heart. I was wondering when it would be my turn and if I would ever be able to celebrate this day as a mother myself.

Later that year (and 2 IVF cycles later), I was finally pregnant. But, just before finding out about this blessed event, a life changing event had already taken place–my mom had died. So, the following Mother’s Day was indeed bitter sweet. It was my very first one as a mom but it was also my very first one without my mom. And while I was filled with incredible joy, I was also overwhelmed with grief. I only wish I had payed a little more attention and showed a little more appreciation to my mom the year before. It bothers me now so much that I was so consumed with my own dismay, I let the moment right in front of me slip away. That year, the last year with my mom, there are moments that I took for granted, moments that I will never get back.

So, my advice for this Mother’s Day is this: Live for the moment and appreciate the day. You may not be a mom yet, but you most likely have your mom, your aunt(s), and maybe even your grandmother(s) to love and be grateful for. Be joyful for all of the women who have been ‘motherly’ to you. And celebrate yourself for all those you are ‘motherly’ to (nieces, nephews, furbabies, students, patients, etc.); you mean a LOT to them. Acknowledge that and smile. Perhaps next year, you will finally celebrate this upcoming holiday with a baby (or two)!

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