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NIAW is around the corner!

From resolve.org

Ok, so I’m doing a little spin on my usual blog love post to say how much I’m loving this year’s NIAW theme: “Don’t Ignore Infertility!” and to give a shout out to those being true activists (although it should come as no surprise).

First up, Resolve is hard at work creating a buzz and organizing this year’s National Infertility Awareness Week which runs from April 22nd to April 28th. There are plenty of things you can do like write a blog post (about how not to ignore infertility), share  your story, sign up for an event, and go to Washington D.C. for Advocacy Day to talk with congressmen about needed change in our government. I for one, am writing a blog post (or two, or three), promoting my new memoir, and traveling to D.C. for Advocacy Day which I’m pretty excited about! Find out what you can do at this informational page.

Next up, I want to share something that Mel at Stirrup Queens is working on called The Analogy Project. It will be a monthly project with different themes and this month, of course, is in honor of NIAW! Mel wants us to focus on “infertility and loss” and write a post that would show a great analogy that helps shed light onto what infertility and loss is really like to an outsider who’s never experienced it. I think this is a fantastic project and I’ve already read quite a few profound posts on the list. I am crafting both my husband’s and my analogies to share with you all later this week, so do come back! ;-) (Click on the above link to get involved!)

And last but not least, I want to share what Keiko has done to help spread awareness for infertility. She used to blog at Hannah Wept Sarah Laughed but now blogs at The Infertility Voice. She created beautiful banners and encourages you to share them among your family and friends particularly on Facebook during NIAW. She even has one for each day of the week if you’d like to partake and share all of them. Kudos to you Keiko! Keep up the great work! Below is an example of one:

from TheInfertilityVoice.com

 

What are you planning to do for NIAW this year?

I hope you find a way to get involved to make a difference!

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The Crisis of Failed IVF ~ A Guest Post

Hello! This post was written by a fertility nurse Robyn Nazar who approached me about featuring this article. Today, I am sharing it with you.

The Crisis of Failed IVF

by Robyn Nazar, RN BSN

When talking about IVF most people talk about the “success rate” of this infertility treatment. Rarely do you hear one talk about the failure rate, which – in all honestly – may be what really matters.

As most know, the majority of IVF treatments fail. The average IVF success rate in the United States is around 30%, but drops dramatically with every year of age. Unfortunately by 41 the likelihood of having a live birth after an IVF treatment lingers somewhere around 12%.

However, despite the diminishing chances with each IVF cycle, many women go back again and again – clinging to
the thread of hope that one day the statistics will finally be on their side.

In a very moving essay featured in the Wall Street Journal last July titled, “My Fertility Crisis” the 42 year-old author Holly Finn gave a very real account of her own experiences with failed IVF treatments. After multiple failed IVF treatments she asked “Would a sane person bother trying again?”

Her question is a very real reflection of the conflict and brokenness that couples feel after trying – and failing – at  IVF. She wrote,

“IVF brings you to your knees and dares you to stagger to your feet again. Even as you steel yourself for more shots and setbacks, it forces you to remember the gentleness in you and the true reasons you want to bring another human into this world…”

“…In the end, infertility can make you feel less human. As cultivated as we are, we hold on to a deep-rooted belief that our worth is tied to how well, and how much, we reproduce. I’ve seen women and men shrink like salted slugs during IVF treatment. I’ve done it myself, disappearing even as the hormones start to puff me up. The whole process makes you feel unlovable.”

Her heartbreaking essay is an excerpt from her book “The Baby Chase” in which she details her every thought and emotion experienced through her walk though infertility. It is stories like hers that would send any couple considering IVF running for the hills.

However, as a fertility nurse, the resounding hopelessness of her story breaks my heart. Miracles can happen and there are many wonderful infertility specialists and physicians out there who are dedicating their lives to helping women just like Ms. Finn.

Take Dr. Norbert Gleicher, for example. As specialist in infertility of “older women”, Dr. Gleicher was riveted by Ms. Finn’s essay – so much so that he sat down and wrote a four-page response.

“What struck me in reading Ms. Finn’s essay was that she did not reflect the anger our profession often faces in publications describing failed IVF and infertility treatment experiences,” wrote Gleicher.

“Instead, she projects a degree of hopelessness and sadness in her message, which is almost harder to take. What she is really telling us in her piece is that as a medical specialty, it is high time to recognize that we, to a large degree, are failing a rapidly growing patient population [of older infertile women] which urgently needs our help.”

He goes on to say that it is women like Finn that he is working with every day to help realize a dream of a child – and then counters her defeat with messages of hope,

It is essential to recognize that even “older” women left without ovarian function of their own still have options… Women today are no longer limited by their own reproductive lifespan (i.e. their ovaries’ ability to produce viable eggs) because egg donation has become widely available. In the United States, egg donation now represents the most rapidly growing fertility treatment within IVF.

Furthermore, he mentions other treatments such as DHEA, which are evolving as alternative ways for older women to become pregnant by using their own eggs.

I was really encouraged by Dr. Gleicher’s thoughtfulness to respond to Ms. Finn’s article because I think that her personal experiences could come across as alarming to those new (and optimistic) to IVF. Although, an “eyes wide open” approach is essential when embarking on the TTC journey, thereality is that reproductive medicine is a fast-growing medical field which continues to defy the odds time and time again.

However, it should also be acknowledged that most couples don’t have such limitlessness resources to support repetitive infertility treatments. Those unfamiliar realities of infertility may callously suggest that those last precious dollars should be spent on an adoption – not on a risk.

But until one is in that vulnerable moment of seeking child of your own making – one never knows what extreme lengths may be taken to make it possible.

So if you are in a fertility crisis try and take stories, like Ms. Finn’s, with a grain of salt. Disappointment is a very real part of the TTC and IVF process, but don’t be disheartened. A small chance is still a chance and thanks
to wonderful infertility specialists, like Dr. Gleicher, we are reminded that hope does still exit.

 

Thanks so much for sharing this Robyn. I agree that hope does exist. And it doesn’t hurt to be reminded.

Thank  you! ;-)

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Fertility Preservation

    It’s Breast Cancer Awareness Month and for this Fertility News Friday, I wanted to link to an article from Fertile Action. It’s an article about the many questions you may have when it comes to cancer and your fertility. If you or someone you know is struggling through cancer and need some options, check this out and pass it along! With knowledge, we have power.

Frequently Asked Questions on protecting your fertility

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September ICLW!

  Hello out there and welcome to my corner of the Internet! I am so excited that Fall is here and I’m looking forward to some fall foliage as I drive into Connecticut today for a family wedding. I’ve been writing this blog for nearly 2 years, shortly after my miracle twins were born via IVF. I also have a daughter who was my first IVF miracle and she is now 4 1/2. I recently wrote a memoir about my journey that I am self publishing and it will be out soon. It’s called Ordinary Miracles and I’m very excited about it!

  It’s PCOS awareness month and I’m having a  PCOS Awareness giveaway you should check out! (Not a lot of people have entered…hint, hint!) And there’s been lots of great information, success stories, and bloggers all related to PCOS this month, so stay around for a while and catch up! ;-)

  I wanted to link to another great site today for Fertility News Friday. The site has a wealth of info. Go to: Your Guide to PCOS. Happy Reading!

 P.S. I’m still looking for guest bloggers to share their experiences with PCOS. If you’re interested in writing a post for this blog this month, contact me at sfinfertility@optimum.net.  

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Is Infertility an Illness?

  Bad-Luck-Clover-So the World Health Organization has recognized infertility as a disease but the rest of the world is still having gripes about it being an illness or just bad luck. When we have medical issues like PCOS, endometriosis, a list of gene factors that can interfere with carrying a pregnancy to term and sperm count, motility and morphology issues…it would seem logical to me that these things are not  just bad luck. What do you think about this issue?

  I’m linking to a video from The Wright Stuff in England. They debated about whether infertility is an illness or just bad luck. (Currently the NHS covers some treatments  which I think is outstanding! I wish we had that national coverage here in America!) And while this host is rather “cheeky” in his argument, (asking an infertile couple if she’d rather let the money go to her treatment than a cancer patient down the hall), I thought it was interesting to say the least. Also, Sarah from Fertile Mindset  called in to comment. Go to the link below and then comment on what you think!

Infertility: An Ilness or just Bad Luck?

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V day, surgery, and a giveaway!

 

0511-0901-1216-3013_Happy_Valentines_Day_Message_clipart_imageSo, today is Valentine’s Day and I will be taking a break from Blog Love Monday! Celebrate with the one(s) you love! I hope you’re day brings you a smile and the love you feel today envelopes you like a warm blanket! ;-)

  Today has another significance for me though…today, I will be having surgery. You see it all started when I began to get extremely heavy periods after having my twins. It turns out my lining was really thick and my hormones out of whack. So, they gave me a D & C (which I didn’t even know you could have if you weren’t miscarrying) and put me on the pill. This has solved the 1 week torture I experienced each month but put my body into a tail-spin of other hormonal issues like extreme moodiness, weight gain, headaches, etc. (Not to mention the sheer irony that I really didn’t need the pill as a real birth control method!) So, my doctor suggested an ablation which basically “burns” the lining so there aren’t anymore bleeding issues. Since this can cause deformations IF the very rare occurrence of a pregnancy should happen to happen, I need the tubal ligation to make things nice and neat. So, in other words, even though this is something I’ve decided mentally, it’s now a medical necessity and there’s no turning back.

   I wrote a post about this before…about how my family is now complete. And I suppose (as I mentioned in that post) that if it weren’t for my infertility, perhaps I would have tried for another child. But, I am so grateful for my 3 children. They are more than I ever thought I would have, love, experience. *And I’m already experiencing how much crazier and more expensive a family of 5 can be! For example, there is no way we can scoot another adult or child friend or family member in our car on any given occasion because our 3 car seats are firmly placed across the back seat and the idea of opening the third row and seriously depleting our much needed trunk/storage space when you’re traveling with and shopping for 3 kids is a near impossibility! And planning a vacation? Well that comes with a whole other list of issues. I’ve recently discovered that we’ve stepped out of the “norm” of a family of 4 and now need things like “family suites” or 2 rooms with a joining door which become much more expensive on cruises and in resorts.  When you add the daily craziness that comes with a pre-schooler and toddler twins (that I LOVE but can be quite overwhelming at times) you could say that I’m completely ready to move forward with this, even though I sort of feel like a piece of my womanhood (that never could have functioned completely naturally on it’s own anyway) is now being taken away. But, it’s time. And…it’s O.K. (*I don’t mean to offend anyone here with or without children, just being real with some of the challenges I now face as a mom.)

 Oh and here’sLifeCharmFrosted a little sneak peek at my upcoming giveaway! Here’s a pendant that my hubby surprised me with for Valentine’s Day! It’s from Love’s Journey and is called Life’s Journey pendant. Isn’t it beautiful? It embodies the infertility symbol that the owner Patrice is trying to spread. She has her own infertility success story and also creates a Fertility Hope pendant. Patrice has so graciously decided to giveaway one of these pendants to one lucky reader! Look for details coming soon!

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Strategies for Mental Rest & Relaxation

  

Illustration by Holly Lindem

Illustration by Holly Lindem

      It’s Fertility News Friday and since I haven’t done one in a while, I thought we were due. I stumbled on this article from Martha Beck at O Magazine online a little while ago. It is a great article outlining strategies for mental rest & relaxation in 4 steps. And while our troughs go much deeper than a ‘break-up’, there are some valid points here that can be beneficial. Check it out! ;-)

 The Secret to Surviving Life’s Low Points

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*IVF Advice*

   39462_200903222306163_thumbWell, since I’ve been through IVF 6 times (3 of those were frozen cycles) and I noticed a LOT of people heading down that path, I thought I’d share some of my best advice when going through IVF.

  1. Do acupuncture as much as possible (or as much as you can afford) through the cycle, especially the day of transfer. *I believe this helped me tremendously with stress throughout all my cycles!
  2. Use a visualization CD specifically for IVF. It will help you meditate and visualize the inner workings of your body. It helped me feel calm and ready to accept the challenges of the cycle.
  3. Eat Organically. It will help keep your body the healthiest during this taxing time.
  4. Accept that there are so many parts of the cycle that are out of your control.
  5. Bring something to occupy yourself during office visits. Your anxiety could get the better of you if you’re stuck waiting hours for your appointment. *I wish I had my And.roid phone then!
  6. Don’t compare your cycle with others. You don’t have the same eggs, sperm, hormones, body, and doctors! Every body and every cycle is different!
  7. Make time for your self throughout the cycle. You will NEED some “me” time away from your cycle, your work and the stress of it all.
  8. Make time for your significant other. Together you will need to connect on many levels and support one another throughout the cycle.
  9. It’s okay to say “No” to gatherings, extra duties asked of you and other commitments that may interfere with your cycle and your emotional well being.
  10. From @chasingamiracle (who recently had her baby girl): “Expect the unexpected.”
  11. From @braving_ivf says: “Ice and/or use benzocane wipes before injections.”
  12. Vent whenever you need to through journaling or blogging or with others online or in person that can relate or (at best) with those that can just listen without unwanted advice.
  13. And perhaps my biggest piece of advice (although it sounds incredibly clichéd) is to take the cycle one day at a time. Don’t get too caught up with details like your follicle growth, how many eggs they’ll get, if they’ll be good quality, if they’ll find enough sperm, how many will fertilize, if you’ll do a day 3 or day 5 transfer, if you’ll even get pregnant at all…it can be so overwhelming! I made the mistake of always thinking about the whole cycle. But when I started to break it down and get through small parts, each day, it was like little victories that helped me get through it.

  What advice do you have? Chime in and I’ll add it to the list! Thanks for stopping by! Happy ICLW!! ;-)

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Fertile Garden Giveaway!

  Good morning everyone and Happy ICLW! If you’re new here I am so happy you came by!  Please peruse my newly organized sidebar for a little of what’s been going on!

iusb_760x100_7284820

Now onto the BIG excitement for the day! I am starting a giveaway courtesy of Fertile Garden “where hope helps things grow.” It’s an amazing shop of hand made fertility & pregnancy bracelets, fertility jewelry and inspiring art featured on Etsy and Shop Handmade! (The owner herself is going through infertility and rounding out an IVF cycle. She also tweets and blogs! So be sure to check those out!)

   I LOVE her jewelry because each piece uses high quality gemstones  “which have special metaphysical properties that are used to enhance fertility and sustain pregnancy.” Some gemstones used most often in Fertile Garden’s pieces are amethyst (which is said to “purify and transmute negativity, boost production of hormones and peace of mind, and give patience and calmness despite overwhelming odds“), moonstone (which ”promotes love, hope and fertility“) and rose quartz (which “are the beads of love and fertility, soothes the heart and promotes peace“). The jewelry is also adorned with charms that are unique fertile symbols like butterflies (“symbols of the soul“), elephants (“symbol of love and virility” said to “increase fertility luck“), and turtles (“symbol of fertility and vitality, known for patience and tenacity“).

  Fertile Garden would like to giveaway this beautiful necklace to one lucky reader!

il_430xN_158584317This beautiful antique bronze fertility necklace features a lovely pendant circle with 5 wire-wrapped moonstone dangles, resembling eggs in the nest, all watched over by two sweet and nurturing mother birds. Birds symbolize love, loyalty and good fortune.”

  To enter: Simply View the shop of items and leave a comment on this post about which piece you would most like to have. Please include your e-mail in your comment so I can contact you!

For extra entries: (each one can be counted!)

  1. Follow @FertileGarden on Twitter!
  2. Follow Fertile Garden’s Blog!
  3. Like Fertile Garden on Facebook!
  4. Follow my blog!
  5. Follow me on Twitter!
  6. Become a fan of my blog on Facebook!

The giveaway will end on  Wednesday, July 28th!

 That’s it!! Good luck!!

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RELAX?!?

  

istock photo

istock photo

    OK, so I was caught up in a post recently from Busted Plumbing about an Infertile Cat Fight which involved a comment left on Naomi’s 999 Reasons to Laugh at Infertility‘s Face.book page. A woman who had gone through PCOS and over 2 years of TTC recently got pregnant and felt that ”the reason it happened was bcz i stopped thinkin about it.” Then a fight ensued as many women took offense to it and it went back and forth. (See the whole text here if you’re dying to read it all! And while you’re there go over to my page to become a fan! ;-) )

   Anyway, it got me thinking about how the whole “RELAX!” or “Just don’t think about it” comments and how it could relate to my blog. I am well aware that the title “Stress Free Infertility” can be considered an oxymoron. You may wonder how you could possibly be stress FREE through your infertility…and perhaps it may be construed as me telling you to RELAX and you will get pregnant.

   Many readers may be thinking that your infertility causes stress and stress could potentially be contributing to your infertility and it is a vicious cycle that you feel trapped in. Well, it is this very thinking that got me to create this blog.

   So rest assured that although I would never come right out and say it, I am not even implying for you to RELAX throughout my blog posts because this very comment would most probably cause more stress! But by reducing the stress you are under in the various ways presented here, you may have better results in getting pregnant (which is detailed in the article linked below).

   Ask yourself this, if you do something that helps with stress (meditating, reading, writing, listening to music, acupuncture, getting a massage, sleeping soundly,  etc.) don’t you feel better overall? That is my goal…to help you through this whole mess of infertility by feeling better. If you are able to achieve a pregnancy, then that is another wonderful side effect now isn’t it? ;-)

While writing this, I stumbled on an excellent article worth checking out.

Stress and Infertility

(Since I haven’t done a Fertility News post in a while, consider this a consolation prize!)

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